Thursday, 29 April 2010

PORTLAND!! Two awesome benefits coming up!

The Need and Bangs are both re-uniting for a Team Natalie benefit show, July 23rd at Berbati's Pan in Portland, OR. Also on the bill are C Average and Thrones! This is going to be HUGE!! Get your tickets now: right here.

Also, tomorrow night (friday april 30th) there is going to be a raging dance party at Valentine's in pdx with proceeds from the bar going to the fund. Playing records will be your buddies Dj Magic Beans (maggie vail), Dj Books (justin trosper), and Dj Miss U (me!).. lots of soul and punk. Come boogie for a great cause!
xo sarah u.

big decisions

I haven't had much time to do an update these days but I am sitting in the car with a snoozin kid in our driveway! So I have a bit of time to write. Things aren't going super great. I am still waiting to get some important supplements like sea cucumber extract and more pau d'arco tea. The silly ash cloud really buggered up my orders and I haven't been able to get my full protocol going. My cancer is still moving at a rather quick pace. I thought it slowed for a bit but then I got a chest infection and the cancer took that opportunity to grow. It's so scary how aggressive it is.

I am having a big issue with time. I need just a few more months to really see how this protocol is going to work and I am not sure I have a few months. My liver tumours are now big enough for me to feel with my hands as well as my spleen. I am starting to get pain and a bit of nausea. A new tumour popped up in my leg and I think I now have one in my right ovary as well. I am terrified that my spleen will burst and no doctors here in the UK will remove it. They are just offering more chemo to see if it will help. They are not that confidant. They said that's why they never pushed chemo much in the first place as nothing works that great for angiosarcomas. It's a really beast of a disease. This has not put me off though or made me feel like I am going to die. I just feel the need to make the right decisions and move rather quickly. I just need more bloody time!

After talking to Dr Gammill on the phone we decided to start me on Methylglyoxal. He sent me home with two bottles of it in case this sort of situation. It should work rather quick and hopefully stop things. Google it for more info. It's very interesting and Dr Gammill has very good results with it. This should buy me some time. The next thing we are looking at is going to America for Insulin Potentiated Low Dose Chemotherapy. Dr Gammill would oversea this adventure and it will be administered at the San Diego Clinic in Mexico. The bad thing about this is that it could take up to a year and it's bloody expensive. We will have to move temporarily to the States. I love my home here and it really breaks my heart to have to uproot Dillon and Dee's life but hea, we have to do what it takes. There is a lot to figure out on that end. We have two fantastic dogs, a house and a mortgage to work out. Plus Dillon's grandparents will be so upset not to see their grandson every week like they do now. Unfortunately, I do think this is the best treatment for me and I don't want to continue to underestimate this disease. It's not your normal cancer and I don't want to be slow at attacking it with everything we got at this point. I am on the edge of things going very badly. Lucky I still feel fit to travel but I don't want to get any worse at all. Pain is very scary as well.

You may be wondering why I don't take the chemo offered here in the UK and the reason is that it will totally destroy my immune system, create drug resistance that would bugger up my chance of doing low dose chemo in the future and it just doesn't really work! Insulin potentianted low dose chemo on the other hand will be a slow but safer way to administer chemo and it won't have the massive damaging effect on my immune system as full dose. It will still could have it's side effect and still disrupt my immune system a little bit but not nearly as bad as high dose. I am in danger with my spleen not working. If I wreck my immune system and have a spleen that doesn't work and I get an infection it could very easily kill me. Look up IPT for more info on this type of chemo. Unfortunately I will still need to get my spleen removed to help things along and try to get any other tumours we can remove out as well. This costs more money and more scary surgery. I am not happy about this but again, do I want to mess around with this cancer? I need to do what it takes.

So that's where we are at at the moment. Things may change again, you never know! It seems to change from one week to the next. I will try to keep you updated. Be on the lookout for fundraising adventures my fantastic friends are doing and if you have any clever ideas let me know. We will need to raise quite a bit of money because we could be looking at spending $75,000 in the next year. Ouch!

By the way the angoigenesis things I am taking are really fascinating. Look them up if your interested.
Bind Weed
Sea Cucumber Extract
Shark Liver Oil
Green Tea Extract
Bovine Cartilage
(no shark cartilage as it's really expensive and totally disgusting)
Tannic Acid
am I forgetting one?

Thanks for all your lovely support!

Tuesday, 13 April 2010

Appt with Royal Marsden

We had a nightmare journey getting to London yesterday for our appoitment with the Sarcoma unit at the London Royal Marsden. It took us 5 hours to get to our appointment and we were 1 hour late! They were very nice there but would not even consider any type of surgery or radio frequency ablation for my liver (too many tumours. They just offer chemo. It looks like not too bad of a chemo (TAXOL)where you get it once a week and it doesn't make you loose your hair or damage your immune system but you get resistance to it pretty quick. That's one to keep in the back pocket but I don't think I will be doing it yet.

We are still concentrating on angiogenesis inhibitors. All the research we have been doing points in this direction. We need to get many different types of angiogenesis inhibitors and take large doses of it and boost my immune system. I have also upped my dose of Thalidamide to 200mg as we found a study of a woman who acheived complete remission on 200mg for 4 weeks. Doesn't work for everyone but I am giving it a try. IT does make me feel a little weird though and a bit tired.

If I can get shrinkage this way then we may consider doing IPT or low dose chemo to try to kill the remaining cells. This is a clever way to do chemo as you don't get drug resistance and no side effects if done properly. They use insulin to bring the chemo into the cancer cells as cancer loves sugar. I am getting a genetic test done tomorrow in London that will test me for any chemotherapy agents and natural treatments that I am compatible with. If any really stand out then we will probably go this route at some point.

This all may change depending on results but this is what we are working on now.

Friday, 9 April 2010

The plan so far

So we are back home now and all geared up on getting me healed from this damn beast. We did a big shop at the homeopathic pharmacy in LA so I could get started right away on the angiogenesis inhibitors as well as other things to fight cancer and boost immune function. I will list it all below. I am taking 61 pills a day at the moment although we may be able to get that down a bit with finding higher doses of things.

As far as what was concluded in our last meeting with Dr Gammill we have a few decisions to make. I really need to get the tumour load down so my body has a chance to fight back. My spleen is the most obvious place to start as I can loose it without major problems. I am not too happy about this but I chance my spleen bursting if I don't get it removed. So we need to find a doctor in the UK who will agree to remove it for me. One of the downfalls of Nationalised Medicine is that you can't just ask for proceedures to be done. They have to agree to it. Now to deal with the tumours in my liver we are looking at Radio Frequency Ablation. I found a few places that do this on the NHS so I just need to get a doctor to refer me to one. They can blast many small tumours in the liver this way. It just takes one overnight stay.

For the tumours on my chest we are looking at conformal radiation or IMRT or gamma knife radiation. This type of radiation has minimal damage to the body as it targets just the tumour and not any other area. I am hoping what I am doing myself at home will shrink the tumours but these are my options to give my body a break so I can fight the rest of the cancer floating around in my blood. If I can't get these things done on the NHS (which is a big possibility)then we will go to China (yes China!)where they have all this really high tech equipment but for a lot cheaper than going private in England. Dr Gammill sends people over there all the time. China could cost around $20,000.

Once I get the majority of the tumours out of my body then I will continue on with all my home medicines and hope that it will keep the tumours from coming back. Healthy diet, healthy lifestyle free of chemicals and keeping constant tabs on my cancer will be the way forward. I can't ever get complacient about it.

I have a few doctors appoitments coming up where I will be discussing this plan and hopefully I will find someone who will agree to this. If not we are going to China!

Here is the list of stuff I am taking....

Selium 500mcg promotes apoptosis
Vitamine E Succinate 1000mg promotes apoptosis
Vitamine C 3000mg immune function
Zinc 50mg immune function
Vit D3 1000mg promotes apoptosis and immune defense
Tri Magnesium 600mg immune
N-Acetyl L-Cysteine 1200mg immune function
DHA(codliver oil) 500mg general health
DHEA 10mg adreanal function
Iodine 2 drops needed for everything!
Evening Primrose 1000mg cancer fighter
Cell Forte (IP6+Isodol) 6 pills boosts immune and cancer fighter
Lipotropic Complex 6 day helps with liver
Bromelain 850mg anti-inflamitory and cancer fighter
DIIM 4 day promotes apoptosis and angiogenesis inhibitor
Beta Glucan 1000mg immune function
Immunity Mushroom 2 day immune function
Thymunex 3 spray day immune function
CoQ10 200mg many things
Curcumin w/bioperine 5.6gm angiogenesis inhibitor
Shark Cartalage 5.250gm angiogenesis inhibitor
Captopril 75mg angiogenesis inhibitor
Thalidomide 1 pill angiogenesis inhibitor
Green tea 1000mg apoptosis
Hoxeys Formula cancer fighter
Astragalus 1 dropper 3xday
Echinacea Goldenseal 1 dropper 5xday for one week
Fermented Soy Protein powder 4 tblsp day cancer fighter
Bitter Almond Oil with cyclodextrin 4 day kills cancer
Greens Powder and Spirulina
Paul d’Arco Tea 10tblsp day immune function

Wednesday, 7 April 2010


Olympia! Come out to this rad show on Saturday and help make $$ for the fund! xo sarah u.

DJ night at Valentines in Portland

Shortly after Sarah Utter's art opening at Land we'll be moving the fun over to Valentines for a dance party extraordinaire to benefit Natalie Cox and help her fight cancer. So come and dance and drink up for Nat - a portion of the bar's proceeds go directly to her.

DJ Miss U (aka Sarah Utter)
DJ Books (ak...a Justin Trosper)
DJ Magic Beans (aka Maggie Vail)

Start Time:
Friday, 30 April 2010 at 21:30
End Time:
Saturday, 01 May 2010 at 02:30
Valentines in PORTLAND OR

Carli Davidson invited you to the event "Pet Photo Fundraiser for Natalie Cox!"

Carli says, "This is a great cause and a cheap -o photo package! Shoot me an email to make an appointment for April 18th, 100% of proceeds go to help Natalie fight cancer!".

Event: Pet Photo Fundraiser for Natalie Cox!
What: Fundraiser
Start Time: 18 April at 09:30
End Time: 18 April at 21:30
Where: $75 for a studio shoot and a processed photo!

Fundraiser for Natalie Cox! Cheap pet photos! All proceeds go to cancer treatment!

Natalie is currently living in England, and getting special cancer treatments done in San Diego. All of the proceeds from this shoot will go to covering her travel and treatment costs! Spaces are limited to the first 15 people, so get in touch ASAP.

One day only, April 18th, Shoot is $75 dollars and includes a processed digital image. All species welcome.

Email me for appointments or details!

To see more details and RSVP, follow the link below:

Tuesday, 6 April 2010

Benefit Show

WHAT: Bands playing benefit for Team Natalie fund! (wish I could be there!)
WHEN: April 10th, 8:30pm
WHERE: 1611 4th, Olympia WA
Broken Water back from US Tour!
w/Nuclear Animals
Morgan and the Organ Donors
and Ferrari Sunrise (aka Kamilchee Chad) short set... don't miss it!

doors at 8:30, show time 9pm sharp

Thursday, 1 April 2010

Center for the Study of Natural Oncology

Ok, so as you know we are in Del Mar. Many of you might be wondering what we are doing here exactly. I wasn't too sure myself as I didn't know what to expect. We are basically staying in a family home in the suburbs of Del Mar which is kitted out with 3 private rooms, kitchen, study full of educational books, sauna, oxygen machine, other weird machines and all sorts of crazy stuff in cupboards. Vincent Gammill runs all of this basically and is a biochemist and a naturopath but very heavy on the chemist side of things and very very knowledgeable in natural oncology. He is very logic driven and doesn't work on theories. I like that. He is also not an egoist like you get with most people in the medical/science field and very trustworthy.

We have basically spent the first 3 days learning about cancer, diet, detox, mechanisms of action and talking a lot about ways to get at my cancer specifically. This is by inhibiting angiogenesis (the growth of new blood vessels) as my cancer is a cancer of the blood vessels. The tumours generate it's own blood vessels to keep it alive once it reaches a certain size. We want to stop that so they for one can't grow and spread and two so they shrink. This is totally doable. I have a big ol list right now of angiogenesis inhibitors. A few examples are curcumin, bindweed, capitrol, shark and bovine cartilage and thalidomide.

I also need to support my immune system and clear my body out of toxins and mycoplasma. I do need to try to kill cancer cells as well! There are many things that can do this and Vincent has a lab and makes up all sorts of crazy chemist concoctions that do this. I have many different things to try and if one thing doesn't work we go to an other. I can't even get into this as it's his stuff and hard to explain.

Other things I will be doing are drinking lots of Pau d'Arco tea. It's the proper kind that Vincent is supplying me. Also Zeolite, kelp/Iodine, milk thistle, orleander, aloe vera, , selenium, D3, astragalus, valine, super foods, omega 3/6 oils vitamins, green tea extract, blood root, cultered soy, hoxey herbal formula. So yeah, lots of stuff and more I haven't listed. My diet is already good so not much change in that. Just lots of veg, whole grains, colourful foods, an egg or two, fish now and again, maybe lamb and lots of just clean food. Basically what I have been doing already. Juicing and a green smoothie in the morning with lots of good stuff in it.

We are learning lots right now and the path is becoming clearer as to exactly what I will be doing. We are finalising a lot of stuff today and tomorrow.

All your awesome donations will be going towards paying for this week, plane tickets, medication, supplements, on-going treatment, a cancer profile test, follow up tests, travel, things to beef up our sauna for detoxing and immune support therapies like IV mistletoe.

By the way, I am already feeling a softening of the tumours on my chest as i have been drinking a shed load of pau d'arco tea and already started a few angiogenesis inhibitor drugs (capitrol and thalidomide). yeah!

Also, I would highly advise anyone with cancer to talk to Vincent and do this week long program. It's a lot to learn and you need to be willing to take your own health into your own hands. He knows his stuff and will work with you for life.