Tuesday, 8 June 2010

new port

Well I finally got a subclavical port put in today. We went down to Dr Munoz clinic in TJ to get it done. The surgeon was really quick and good. I was scared shitless as the thought of putting a tub down my vein into somewhere in the centre of my chest is a bit scary! It was painless but I did feel it when it popped down into my chest somewhere. Creepy. It's all good though as now I don't have to have sore veins and wait 4 hours for a drip to get done. It's a lot quicker and painless this way.

I have been feeling a bit rubbish since I had to a 4 day break between treatments. I felt ok for 2 days and then felt myself going down hill again. I am glad to be getting on again with a super IV treatment I cant really spill the beans about plus high dose vit C and K3 and artisinate. I have been sleeping really bad lately. I hope that improves.

I have acupuncture tomorrow which will be good and more IV. Dillon is so three years old right now and can't sit still for a second. He does like to play UNO and goes to the park a lot. He is looking like a tan, blond California boy right now. Dee is holding it all together.
More again soon. We are moving houses this weekend.

Saturday, 5 June 2010

Slowly Slowly

Things are going ok here. I have my sister and her partner visiting for the weekend which is great. The weather is nice as usual and we have managed quite a few outings this week. I had acupuncture on Friday which was really helpful with my energy levels. I have been feeling really wiped out. I am sleeping really badly which is so frustrating. There are good things starting to show though. I am not nauseous anymore and I am eating more. I don't have night sweats and my abdomen is a little less swollen. I am still really uncomfortable with my liver enlarged though. It's hard to get comfortable.

This week I started another med along with the Vit C +K3. It has a very good track record for shrinking liver tumours fast. Problem is I can't shrink stuff too fast as my spleen and liver need to be able to cope. I did it for 3 days straight and am now taking 3 days off. My spleen is hurting a bit so I think it's trying to cope with die off. It is also tiring. My veins are getting really tired though so I am going to get a PICC line in hopefully mon or tuesday. We are still waiting for the damn chemicles to come in that Dr Gammill needs to make up the slam dunk IV treatment we are hoping will kick this cancers ass. It was supposed to come in on FRI promised the company. Arg, it did not so it will be early next week. One of these days I will get started on it. I am not going downhill though which is lucky as we have a wait going on here. The other things I am doing seem to be helping for sure.

Dillon has a new friend we have been hanging out a lot with and he is really having fun. He is so tired out every day. More friends are planning visits and we are looking at a place tomorrow to rent temporarily as this place we are staying in now we will have to vacate on the 14th. Looks like a cute little place.

A lot of cool fundraising stuff is still happening. I need to write more about it. I really appreciate all the love and support. I am just still quite a bit tired everyday and don't always have energy to reply to emails and write stuff. I hope everyone understands. much love -nat